41.jpg

CEREBRAL PALSY THERAPIES ON WHEELS

The problem we are solving

Cerebral Palsy (CP) is the leading cause of physical disability in children worldwide. Children with CP often have difficulty with walking, speaking, swallowing, writing, and going to the bathroom. Some children with CP also experience epilepsy, which is accompanied by seizures.  In Ghana, about 22,000 children are estimated to live with CP.

The death rate of children with cerebral palsy in Ghana is 15 times that of the average child in a developing country. Research from our own work suggests that more than 85% of children with CP in Ghana do not attend school because they do not have or meet the basic functional capabilities the government requires for enrolment in school. These problems are compounded by social stigma, which forces caregivers to hide children with cerebral palsy or commit infanticide

  • High healthcare cost and fractured services are among the top reasons why children with CP have limited access to existing rehabilitation therapy. The monthly minimum wage in Ghana amounts to $42 a month. This income is incomparable to the $187 cost of the three common therapies the children need (physical, occupational therapy, and speech) per month. Given the long-term nature of the children’s condition, they require multiple sessions of therapy per year. These costs are not covered by Ghana’s health insurance, leaving the financial burden on families, particularly women. In addition, the multiple therapies families need are not in one place. Each therapy is located at a different town or city. Health teams do not also work together on the same child to provide the best of care. This fractured system increases childcare burden, transportation cost to receive care, healthcare cost, and high dropout rate from health care. The system barriers perpetuates poverty. It is not surprising that about 76% caregivers stop receiving therapy within the first six months after diagnosis, according to our needs assessment.

  • Providing rehabilitation therapy would allow children with CP to function independently, survive, go to school, and be included in society. Our non-profit, the Center for Learning and Childhood Development-Ghana set up a community-based, one one-stop shop, free-of-charge therapy, and training clinic for families of children with cerebral palsy and other developmental disabilities. This once a week training clinic provides physical (physio) therapy, occupational therapy, and speech therapy within the same clinic visit. Caregivers also receive training on therapy techniques they can perform at home, as well as on childcare and parenting

ESSENTIALS SERVICES

Most children with CP in Ghana do not have access to rehabilitation therapy. Rehabilitation therapies are specialized services that help individuals regain any physical, mental, social or learning capabilities they have lost (e.g. physical (physio) therapy, occupational therapy, speech therapy) due to injury or disease.

Limited access to rehabilitation therapy has a real negative effect on the children’s physical and social well-being.  These three essential therapies: speech, occupation, and physiotherapy are provided for children with cerebral palsy at a designated location free of charge

 

SPEECH THERAPY

OCCUPATION THERAPY

PHYSIOTHERAPY

 

ESSENTIALS SUPPORT

 

The social perceptions of CP in Ghana create stigma and negative experiences for caregivers and their children. The “connect with a family” initiative aims at bridging the gap between CP families and the society by connecting families/individuals with CP families. Families/individuals are provided with the opportunity to interact with the CP families either in-person, virtual or on phone. The main roles of families/individuals who participate in “connect with a family” program is to provide emotional and social support to the CP families by building long lasting bonds, checking up on them frequently, providing counsel or directing the families to appropriate support systems. Financial or providing items to the CP families is prohibited. If you have any gift for your CP family, it is required to be sent through the organization. To participate in the Connect with a Family initiative, contact us to register. Email: clcdghana@gmail.com

ADOPT-A-FAMILY

Every week children with cerebral palsy are provided with therapy clinics in their communities. The Adopt-a-Family program allows individuals and families to support the payment for the treatment of a CP family.

To participate and support this program with either a monetary donations or donation of necessary items needed, please use the information below. Please we encourage you to donate to support CPT on wheels project. All donations go directly in supporting the mobile clinic and CP families. To donate, use the payment information below.

Equipment and Materials

○        Immediate Needs

■         Wheelchairs

■         Diapers

■         Baby Wipes

■         Toys and supplies for children

■         Balancing equipment

■         Mats

○        Long-term goals

■         Van for transporting patients

DONATION OPTIONS

Weekly/Monthly Giving

Become a Partner with Cerebral Palsy Therapies of Wheels By joining our weekly/monthly giving program you provide stable funding that enables us to deliver consistent and quality physical, occupational and speech therapies for children with cerebral palsy.

Weekly/monthly reminders will be sent at the beginning of each week/month to remind you of payment. Contact us to partner with us. Email: [clcdghana@gmail.com]

ESSENTIALS SUPPORT

Wish list

■Wheelchairs

■Diapers

■Baby Wipes

■Toys and supplies for children

■Balancing equipment

■Mats

■Van for transporting patients

 

 The impact we have made so far


Over 300 therapy sessions to children, spanning 60 families

We opened a second location to provide therapy sessions, with community requests for a third location

96% of the children receive physical therapy; 46% receive occupational therapy and 18% receive speech therapy to help them talk, walk, speak, eat, and socialize

All the services are provided to families free of charge


Several of the children have improved, particularly physical development, including one child who had not walked for eight years

Of note, close to 80% of families return each week to receive care, indicating satisfaction with the program.

 
 
 

TESTIMONIES FROM CAREGIVERS

unsplash-image-G9i_plbfDgk.jpg
 

   Give Today. You can donate any amount to sponsor the treatment of a cerebral palsy child

Credit/Debit Card | PayPal | Mobile Money | Cash App